When No One is Listening: Advocating Successfully with Your Child's Medical Team
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Colorado Alliance for Health and Independence (CAHI) - is a disability care coordination organization that seeks to provide an alternative to the current healthcare system for persons with disabilities across Colorado.
Colorado Citizens for Patient Safety
Department of Health Care Policy and Financing - Information on everything you need to know about Medicaid.
Doctor Appointment Transportation for Children who have Medicaid
Access newly-published Family-Centered Care Self-Assessment Tools, designed as an opportunity for health care practices and families to assess current areas of strength and identify areas for growth, plan future efforts, and track progress toward family-centered care. These tools include a Family Tool, a Provider Tool, and a User's Guide. An online feedback survey will soon be available on the Family Voices web site.
Find a Provider Agency - Information on agencies providing care services in the home or community for Colorado Medicaid clients.
Health Care Program for Children with Special
Needs
Parent as Certified Nursing Assistant
Patient's Right to Know - Search for information about your doctor's background
School Nursing and Health Services
Deby's Gluten Free Bakery - Carries a wide variety of wheat-free, gluten-free products.
Starlight Children's Foundation - Services are provided for seriously, chronically and terminally ill children, aged 4 through 18 years.
Mobility
Air Transport
AMA Physician Select - Comprehensive information on individual physicians from which consumers can select or verify the credentials of a known physician.
Clinical Trials Research - Search the collection of research studies being conducted at the NIH Clinical Center.
Emergency Preparedness for Children With
Special Health Care Needs - A sample form
for emergencies.
Families USA - Great source for information on health care payer systems (insurance and Medicaid).
Health Care Advocacy Bulletin – Many
great articles.
healthfinder® - Guide to reliable health information developed by the U.S. Department of Health and Human Services.
The Internet Drug Index - Explanations in non-medical jargon.
The SCOR (Special Care Organization Record) - A Health Care Notebook that has been designed with the unique needs of the military in mind, but also useful for civilian families.
MEDLINE
National Vaccine Information Center - Information on vaccines and what they do.
Online Health Resources - A comprehensive directory of health related websites.
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