After the Diagnosis - Specific Recommendations for your child's disability.

• CHADD (Children and Adults with Attention Deficit Disorders/Hperactivity)

• ASDVoice.com  - Exploring Autism through Personal Experience

• Autism (CDE)

• Autism and Developmental Disabilities Service at JFK Partners

• Autism Society of Boulder County

•   Autism Society of Colorado  (ASC) provides information, support and advocacy for individuals with autism.

• Larimer County Autism Society

• Roaring Fork Autism Network

• Autism Key (run by parents) including Autism Friend Finder

Blindness

• Blindness/Low Vision (CDE)
• Colorado School for the Deaf and the Blind
• Deaf/Hard of Hearing (CDE)
• Deafblindness (CDE)
• Recording for the Blind and Dyslexic - Rocky Mountain Unit
• The Nat'l Information Clearinghouse on Children who are Deaf-Blind

• Cerebral Palsy of Colorado

Chromosome Disorders

•   The XXYY Project

• Chromosome Disorder Outreach - Education, information, advocacy and support for all those affected by any rare chromosome disorder.

•   The MIND Institute is a phenomenal resource for any who have children on the autism spectrum, Fragile X Syndrome or many other genetic disorders that include neurodevelopmental issues.

• Rare Chromosome Disorders Support Group  - Good resources; also has listserv

Cri du Chat Syndrome

• 5p- Syndrome - Parent support group for families having a child with 5p- Syndrome, also known as Cat Cry Syndrome or Cri du Chat Syndrome.

Dandy-Walker Syndrome

• Dandy-Walker Alliance

• Colorado Springs Down Syndrome Association

• Denver Down Syndrome Clinic

• Mile High Down Syndrome Association

• Down Syndrome Pregnancy - A new resource for expectant parents to help them as they await the birth of a baby with Down syndrome.

Duchenne Muscular Dystrophy

• Muscular Dystrophy Parent Project

Dyslexia

• Colorado Talking Book Library

• Recording for the Blind and Dyslexic - Rocky Mountain Unit

• Rocky Mountain Branch of International Dyslexia Association

Dyspraxia

• Dyspraxia, USA

Epilepsy

• Epilepsy Foundation of Colorado

Fragile X

• Developmental FX - Specializing in clinical services to families with Fragile X Syndrome and other neurodevelopmental disorders.

Hearing Impairments

• Colorado Families  for Hands & Voices - Dedicated to providing support to families with children who are deaf or hard of hearing.

•  Communication development for baby's with hearing loss.

• Deaf/Hard of Hearing (CDE)
• Deafblindness (CDE)
• The Nat'l Information Clearinghouse on Children who are Deaf-Blind
• So the World May Hear - Help for purchasing hearing aids

Infantile Scoliosis

• Infantile Scoliosis Outreach Program (ISOP)

• KS&A (Knowledge, Support & Action) - Outreach to individuals and their families with one or more extra X and/or Y chromosomes.
• Klinefelter Syndrome Support Group Home Page

Learning Disabilities

• Learning Disabilities Association of Colorado - Advocacy and education of learning disabled children and adults.

• Specific Learning Disabilities/Perceptual Communicative Disability (CDE)

• National Center for Learning Disabilities

Mental Health

• P2P Resource Storeroom - Mental Health Resources

Prader-Willi Syndrome

• Prader-Willi Syndrome Association

Rare Diseases

• The Rare Disease Community

Rett Syndrome

• International Rett Syndrome Association

• Parenting a Child with Sensory Processing Disorder - A Family Guide to Understanding & Supporting Your Sensory-Sensitive Child

• Shaken Baby Syndrome

• The Sarah Jane Brain Project - An open access site dedicated to sharing specific information for ALL professionals and families interested internationally in shaken baby syndrome.

Smith-Lemli  Syndrome

• Smith-Lemli-Opitz/RSH Foundation

Spina Bifida

• Colorado Spina Bifida Association (CSBA)

Strokes

• Children's Hemiplegia and Stroke Association (CHASA) - Information and support for families of children who have hemiplegia and/or childhood stroke.

• Hemi-Kids - Information about online email support group for families of children who have hemiplegia or hemiplegic cerebral palsy or childhood stroke.

• Kids Have Strokes - Information on in utero stroke, perinatal stroke, prenatal stroke, infant stroke and childhood stroke.

Tourette Syndrome

• Tourette Syndrome Association Rocky Mountain Region
  Phone: (303) 832-4166, E-mail: tsarmr@att.net

Tuberous Sclerosis

• Tuberous Sclerosis Alliance of the Rocky Mountain Region

• VACTERL Network - Local contact, Josie, can be reached at denvervatersupgrp@yahoo.com.

• The Williams Syndrome Association