The Resource Storeroom - Medicaid, Waivers & SSI  

Resources listed by topic with Colorado resources listed first  

indicates "Parent Recommended" links  ♦  Parent Wisdom  ♦  Where Do I Start?  ♦  


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Topics on this Page


Colorado Medicaid Waivers

Medicaid is a program, funded by the federal and state governments, which pays for medical care for low income people and those with special health care needs who are eligible for specific programs.

Medicaid waivers enable people (including children) who wouldn’t otherwise qualify for Medicaid due to income or assets to access Medicaid benefits even if the person already has private insurance.  In the case of families, parental income is not considered for eligibility.  Only a child’s assets or income is considered.  Therefore, many children with extraordinary health care needs qualify for Medicaid waivers because they have few assets and no (or virtually no) income.  A child must have institutional-level of care requirements to be eligible for these waivers.

For help in knowing how to see if your child might qualify for any of the waivers, you can start with Family Voices at 1-800-881-8272.

 


Colorado Medicaid Waiver Resources

  Definition of Developmental Disability and the new Declaratory Order dated March 14, 2008 [doc]

 

 Medicaid Waiver FAQ

 

 Medicaid Waiver Chart - Home & Community Based Waiver (HCBS)

 

 Medicaid Waivers - Information on Medicaid Waivers for families who have children with disabilities or high medical needs.

 

Medicaid Provider Look-Up

 

 Find a Provider Agency - Information on agencies providing care services in the home or community for Colorado Medicaid clients.

 

Obtaining Services from a Different CCB

 

 Parent as CNA (Certified Nursing Assistant) - Sends a request to P2P for the CNA wisdom file to be sent to you via email.

 

Doctor Appointment Transportation for Children who have Medicaid

 

Coverage for OTC Drugs through Medicaid

 

Long Term Care Options (720-974-0032) - Coordinates services for people who need help with their daily living activities. Services are available on a private pay, low cost or Medicaid basis depending on a person's situation or ability to pay.

 

Colorado Health Insurance Statutes

 

Community Centered Boards manage and deliver services, in partnership with private service providers, to individuals with developmental disabilities and their families throughout the state of Colorado.

 


National Medicaid Waiver Resources

Medicaid Waivers by State (great list if you are considering moving and want to know what is available in other states.)

 

National Analysis of Medicaid Services - Analysis of state Medicaid services for people with developmental disabilities including state rankings as well as letter grades in key areas of Medicaid service delivery.

 

Centers for Medicare and Medicaid Services (CMS)

 

New Disability Determination Process 05/06

 

Families USA - Great source for information on health care payer systems (insurance and Medicaid).

 

Understanding Medicaid Home and Community Services: A Primer - (P2P note - This is not a family friendly or easy to read summary.  It is very detailed information.)

 


CES Waiver Children’s Extensive Support Waiver

This is a waiver for children who qualify for services through the developmental disabilities system who also have significant functioning and/or behavioral differences. These children require nearly 24-hour supervision.  Even at night, a parent or caregiver must attend to them in either a behavioral intervention or a health or safety intervention at least every three hours.

To be eligible for the CES Waiver the child’s family income does not have to be above the SSI Income Eligibility level.  A child may already have Medicaid and still be eligible for this waiver.  In addition to services covered by Medicaid the child can get things like special training, equipment, home modifications, non-medical care while parents are not available, special formulas or other things that Medicaid does not cover.  The family will also get a case manager to assist them to identify and obtain needed services/supports.

To see if your child might qualify for this waiver contact your local
Community Centered Board (CCB).

 

Family Voices can also help walk you through the steps of accessing the CES waiver. Call 1-800-881-8272.

 

CES Waiver Eligibility (scroll to 8.503.30)

 

Process to enroll in CES Waiver Services and to be placed on the CES waiting list.

 

CES Waiver Application - You can contact Sheila Peil, 303-866-7467, at the State Level to see where your child is on the waitlist.

 

CES Waiver Manual (probably more than you want to know).

 


CHCBS Waiver Children’s Home and Community Based Services Waiver

 

A listing of the HCBS waivers can be found here.

 

Children on this waiver are significantly impacted by health and/or developmental disabilities or delays.  They must function well below their peers in at least one area, passing a screening assessment called the ULTC 100.2. (See Long Term Care Eligibility Assessment ). Requires that a family’s income (parents or primary caretakers) not be low enough that the child might qualify for SSI (Supplemental Security Income). They must show proof to Medicaid from the Social Security Administration that their income is above the eligibility level for their child to qualify for SSI.

 

To find out if your child might qualify for a waiver contact your Community Centered Board or your local Single Entry Point for Long Term Care (SEP). 

 

Family Voices can also help walk you through the steps of accessing the CHBCS waiver. Call 1-800-881-8272.

 


In-Home Support Services (IHSS)

 

Available for people enrolled in the HCBS-EBD or Children’s HCBS Waiver program who want more choice and control in their home care.  IHSS is a Colorado Medicaid service that helps people with disabilities and families of children with disabilities to select and direct their in-home support services.  In IHSS you can have more independence and flexibility. You can:

  • Choose an IHSS agency and your attendants
  • Train and supervise your attendants, even family members (not parents if child is under 18 years old)
  • Decide when and where you receive services
  • Have an authorized representative, or someone to help you manage the program

In IHSS you choose an agency from an approved list. The agency will:

  • Help you hire, train and pay your attendants

  • Help you plan your 24 hour emergency and back-up care

For more information call 303-866-2704, or talk to your Medicaid Waiver Case Manager.

 


CHRP Children’s Habilitation Residential Program

CHRP is for children who cannot live at home. These are children who have developmental disabilities (mental retardation) and emotional/behavioral needs too significant for unskilled parents or other caregivers to provide for them appropriately.  They generally live in foster home families or group facilities.

 


CWA Waiver Children With Autism Waiver

CWA is a waiver for children under age six who have the diagnosis of autism.  This waiver requires that the child be eligible for or on another waiver program or have Medicaid through another program (like SSI).

 


EPSDT  Early & Periodic Screening, Diagnostic & Treatment

To see if your child might qualify for this waiver contact your local
Community Centered Board (CCB).
 


Comp & SLS Supported Living Services Waiver

 

Obtaining Services from a Different CCB

SIS (Supports Intensity Scale) Assessments - For Supported Living Services (SLS) waiver participants.

SIS Interview Guidelines & Suggestions for Parents and Guardians - Developed by PAD-CO.

Supports Intensity Scale FAQ

 


SSI Social Security Insurance

 

 SSI

 

Deeming - In-Home Supportive Services Payments

 

The Benefit Eligibility Screening Tool (BEST) - Tool to find out if you could be eligible for benefits from any of the programs Social Security administers.

 


"Straight" Medicaid

Medicaid Information - General Overview

 

Government Benefits connects people in need to government assistance programs.