The Resource Storeroom - Disability Specific  

Resources listed alphabetically with Colorado resources listed first in each disability category  

indicates "Parent Recommended" links  ♦  Parent Wisdom  ♦  Where Do I Start?  ♦  


  General Disability Resources  ♦  Specific Disability Resources  ♦  
♦  Education, IEP & 504 Resources  ♦  IDEA  ♦  CDE Resources  ♦  
  Early Childhood    Youth & Adult (including Transition)  ♦  Parenting  ♦  
 Medicaid, Waivers & SSI  ♦  Advocacy & Legal Resources    Financial Planning  ♦  
 Health Care & Medical Resources ♦  Mental Health Resources  ♦  
♦  Equipment  & Technology  ♦  Recreation & Toys  ♦  Childcare    Misc Services  ♦  

There are many resources on the web for various disabilities.  We have included a few here that have been identified by our members as
(1) particularly helpful and/or (2) located in Colorado.
   

 

ADHD

 
  • CHADD (Children and Adults with Attention Deficit Disorders/Hperactivity)
  Autism/Asperger
 
 

Blindness

 
  Cerebral Palsy
 
 

Chromosome Disorders

 
  • The XXYY Project

  • Chromosome Deletion Outreach - Education, information, advocacy and support for all those affected by any rare chromosome disorder.

  •   The MIND Institute is a phenomenal resource for any who have children on the autism spectrum, Fragile X Syndrome or many other genetic disorders that include neurodevelopmental issues.

 

Cri du Chat Syndrome

 
  • 5p- Syndrome - Parent support group for families having a child with 5p- Syndrome, also known as Cat Cry Syndrome or Cri du Chat Syndrome.

 

Dandy-Walker Syndrome

 
  Down Syndrome
 

Duchenne Muscular Dystrophy

 
 

Dyslexia

 
 

Dyspraxia

 
 

Epilepsy

 
  Fetal Alcohol Syndrome
 
  • NOFAS Colorado

  •  

    Fragile X

     
    • Developmental FX - Specializing in clinical services to families with Fragile X Syndrome and other neurodevelopmental disorders.

     

    Hearing Impairments

     
     

    Holoprosencephaly

     
     

    Infantile Scoliosis

     
      Klinefelter Syndrome
     
     

    Learning Disabilities

     
     

    Lissencephaly

     
     

    Mental Health

     
     

    Non-Verbal Learning Disorder

     
     

    Parry Romberg Syndrome

     
     

    Prader-Willi Syndrome

     
     

    Rare Diseases

     
     

    Rett Syndrome

     
      Shaken Baby Syndrome
     
     

    Smith-Lemli  Syndrome

     
      Speech-Language
     
     

    Spina Bifida

     
     

    Strokes

     
    • Children's Hemiplegia and Stroke Association (CHASA) - Information and support for families of children who have hemiplegia and/or childhood stroke.

    • Hemi-Kids - Information about online email support group for families of children who have hemiplegia or hemiplegic cerebral palsy or childhood stroke.

    • Kids Have Strokes - Information on in utero stroke, perinatal stroke, prenatal stroke, infant stroke and childhood stroke.

     

    Tourette Syndrome

     
    • Tourette Syndrome Association Rocky Mountain Region
      2020 South Oneida Street, #19 Denver, CO 80224
      Phone: (303) 832-4166, E-mail:
      tsarmr@att.net
     

    Tuberous Sclerosis

     
      VACTERL
     
      Williams Syndrome