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After the Diagnosis - Specific
Recommendations for your child's
disability.
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ADHD
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|
 CHADD (Children and Adults with Attention Deficit Disorders/Hperactivity)
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Autism/Asperger
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Autism (CDE)
Autism & Asperger Connections Colorado
Springs Autism Resource Directory
Autism and Developmental Disabilities
Service at JFK Partners
Autism Society of
Boulder County
Autism
Society of Colorado (ASC) provides
information, support and advocacy for
individuals with autism.
Larimer County Autism Society
Roaring Fork
Autism Network
Autism Key
(run by parents) including Autism Friend
Finder
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Blindness
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Blindness/Low Vision (CDE)
Colorado
School for the Deaf and the Blind
Deaf/Hard of Hearing
(CDE)
Deafblindness
(CDE)
Recording
for the Blind and Dyslexic - Rocky Mountain Unit
The
Nat'l Information Clearinghouse on
Children who are Deaf-Blind
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Cerebral
Palsy |
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Cerebral Palsy
of Colorado
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Chromosome Disorders
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The XXYY Project
Chromosome Disorder Outreach - Education, information,
advocacy and support for all those affected by any rare
chromosome disorder.
The
MIND
Institute is a phenomenal resource for any who
have children on the autism spectrum, Fragile X
Syndrome or many other genetic disorders that include neurodevelopmental issues.
Rare
Chromosome Disorders Support Group
- Good resources; also has listserv
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Cri du Chat Syndrome
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5p- Syndrome - Parent
support group for families
having a child with 5p-
Syndrome, also known as Cat Cry
Syndrome or Cri du Chat
Syndrome.
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Dandy-Walker
Syndrome
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Dandy-Walker
Alliance
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Down
Syndrome |
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Colorado
Springs Down Syndrome Association
Denver Down Syndrome Clinic
Mile High Down
Syndrome Association
Down Syndrome Pregnancy
- A new resource for
expectant parents to help them as they await the
birth of a baby with Down syndrome.
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Duchenne
Muscular
Dystrophy
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Muscular Dystrophy Parent Project
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Dyslexia
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Colorado Talking Book Library
Recording for the Blind and
Dyslexic - Rocky Mountain Unit
Rocky Mountain Branch of
International Dyslexia
Association
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Dyspraxia
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Dyspraxia, USA
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Epilepsy |
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Epilepsy Foundation of Colorado
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Fetal
Alcohol Syndrome |
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NOFAS Colorado
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Fragile X |
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Developmental FX -
Specializing in clinical
services to families with
Fragile X Syndrome and other
neurodevelopmental
disorders.
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Hearing Impairments |
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Colorado Families
for
Hands & Voices - Dedicated to providing
support to families with children who are
deaf or hard of hearing.
Communication development for
baby's with hearing loss.
Deaf/Hard of Hearing
(CDE)
Deafblindness
(CDE)
The
Nat'l Information Clearinghouse on
Children who are Deaf-Blind
So the World May Hear - Help for
purchasing hearing aids
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Infantile Scoliosis
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Infantile Scoliosis Outreach
Program (ISOP)
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Klinefelter Syndrome |
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KS&A
(Knowledge, Support &
Action) - Outreach
to individuals and their
families with one or more
extra X and/or Y
chromosomes.
Klinefelter Syndrome Support Group
Home Page
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Learning
Disabilities |
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Learning
Disabilities Association of Colorado -
Advocacy and education of learning disabled
children and adults.
Specific Learning Disabilities/Perceptual Communicative
Disability (CDE)
National
Center for Learning Disabilities |
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Mental
Health
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P2P Resource
Storeroom - Mental Health Resources |
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Prader-Willi Syndrome
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Prader-Willi Syndrome
Association
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Rare Diseases |
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The Rare
Disease Community
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Rett Syndrome
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International Rett Syndrome
Association
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Sensory Integration Issues |
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Parenting a Child with Sensory
Processing Disorder
-
A Family
Guide to Understanding & Supporting Your
Sensory-Sensitive Child
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Shaken
Baby Syndrome |
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Shaken Baby Syndrome
The
Sarah Jane Brain Project - An open access site
dedicated to sharing specific information for ALL
professionals and families interested internationally in
shaken baby syndrome. |
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Smith-Lemli Syndrome
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Smith-Lemli-Opitz/RSH Foundation
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Spina
Bifida
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Colorado Spina Bifida Association
(CSBA)
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Strokes |
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Children's
Hemiplegia and Stroke Association
(CHASA) - Information and support for
families of children who have hemiplegia
and/or childhood stroke.
Hemi-Kids
- Information about online email support
group for families of children who have
hemiplegia or hemiplegic cerebral palsy or
childhood stroke.
Kids Have Strokes - Information on in
utero stroke, perinatal stroke, prenatal
stroke, infant stroke and childhood stroke. |
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Tourette
Syndrome
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Tourette Syndrome Association Rocky Mountain Region
Phone: (303) 832-4166, E-mail:
tsarmr@att.net
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Tuberous Sclerosis
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Tuberous Sclerosis Alliance of
the Rocky Mountain Region
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VACTERL |
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VACTERL Network -
Local contact, Josie, can be
reached at denvervatersupgrp@yahoo.com.
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Williams Syndrome |
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The Williams Syndrome Association
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